Managing MECFS is a tightrope of energy.
I've been doing brilliantly until today. Exercising nearly everyday, cooking healthily (something I've not been able to do for a number of years now - as I've had to live on £3 Tesco Meal Deals or equivalent if not using food donated to Street Kitchens which in the main is High in sugar & fat).
It's all it takes is for a little thing not to be there for you when YOU need it, to induce an MECFS crash.
I'd planned perfectly what I was going to do today. It's sunny, you can never miss an opportunity to
The windows are opaque, which means you can never see out. This requires the front door to be open constaantly to allow in daylight, but that means the sounds of the construction workers permeates in a way that is unbearbale.
As I type this the drilling is excruciating, that of a dentist's knawing its way through enamel in high pitched tone that resembles the patient screaming. Now it's hammering, thumping a migraine into my head and now both together.
This is nearly everyday since I've been here and unlike being at Heathrow where I could simply walk away from it. I have to either shut out daylight to diminish it or.
The person managing the building is barely able to understand English so, our communications are a stilted version of hand-gestures and me doing a Cleeseesque impersonation of Fawlty speaking to Manuel.
This means the simplest task requires the most energy.
I've been housed in a Hotel Appartment which would leave you to believe the room and bedding would be cleaned once a week. Again as I'm typing this the Hotel Manager comes over to tell me this is getting done once a fortnight.
He also tells me how poorly things are being organised. People who are ill feted to deal with being indoors are getting violent
I walked three miles at pace, yesterday, as ever, I felt elated proud of myself and energised. I knew it wouldn't last, but in that moment I savoured it in the best way possible.
I've been doing brilliantly until today. Exercising nearly everyday, cooking healthily (something I've not been able to do for a number of years now - as I've had to live on £3 Tesco Meal Deals or equivalent if not using food donated to Street Kitchens which in the main is High in sugar & fat).
It's all it takes is for a little thing not to be there for you when YOU need it, to induce an MECFS crash.
I'd planned perfectly what I was going to do today. It's sunny, you can never miss an opportunity to
The windows are opaque, which means you can never see out. This requires the front door to be open constaantly to allow in daylight, but that means the sounds of the construction workers permeates in a way that is unbearbale.
As I type this the drilling is excruciating, that of a dentist's knawing its way through enamel in high pitched tone that resembles the patient screaming. Now it's hammering, thumping a migraine into my head and now both together.
This is nearly everyday since I've been here and unlike being at Heathrow where I could simply walk away from it. I have to either shut out daylight to diminish it or.
The person managing the building is barely able to understand English so, our communications are a stilted version of hand-gestures and me doing a Cleeseesque impersonation of Fawlty speaking to Manuel.
This means the simplest task requires the most energy.
I've been housed in a Hotel Appartment which would leave you to believe the room and bedding would be cleaned once a week. Again as I'm typing this the Hotel Manager comes over to tell me this is getting done once a fortnight.
He also tells me how poorly things are being organised. People who are ill feted to deal with being indoors are getting violent
I walked three miles at pace, yesterday, as ever, I felt elated proud of myself and energised. I knew it wouldn't last, but in that moment I savoured it in the best way possible.
